The New Eugenics: One of America's cures for disability is death
Neumayr, George
The New Eugenics YEAR IN AMERICA fewer and fewer disabled infants are born. The reason is eugenic abortion. Doctors and their patients use prenatal technology to screen unborn children for disabilities, then...
...University of Chicago professor Leon Kass, in his book L{ fe, Liberty and the Defense of Dignity, writes that "at my own university, a physician making rounds with medical students stood over the bed of an intelligent, other-wise normal ten-year-old boy with spina bifida...
...Andrew Kimbrell points out that many parents are given the complicated information prenatal screening yields with little to no guidance from doctors...
...There is enormous confusion out there and nobody is out there to help them," he says...
...In an atmosphere of expected eugenics, even queasy, vaguely pro-life parents gravitate towards aborting a disabled child...
...THINI{ OF IT AS A COMMERCIAL EUGENICS," says Andrew Kimbrell, executive director of the International Center for Technology Assessment...
...Charles Strom, medical director of Quest Diagnostics, which specializes in prenatal screening, told the New York Times last year that "People are going to the doctor and saying, `I don't want to have a handicapped child, what can you do for me...
...Reproductive technology is an unregulated Wild West scenario where people can do pretty much anything they want and how they want it," he says...
...Now prenatal screening can identify hundreds of conditions...
...Among the aborted are children screened for deafness, blindness, dwarfism, cleft palates, and defective limbs...
...Only through political gaffes (and occasional news stories) is eugenic abortion ever mentioned, such as the time in 2003 when a blundering Hillary Clinton objected to a ban on partial-birth abortion because it didn't contain an exemption for late-term abortions aimed at the disabled...
...But I don't think you can read her comments and come to any other conclusion than that the children with disabilities should have less constitutional protection than children who are healthy...
...This dropping trend line corresponds to the rise of prenatal screening...
...It is not a progressive value to think that a disabled person is better off dead " •' George Neumayr is executive editor of The American Spectator...
...What kind of message does this send to people living with spina bifida and other disabilities...
...Working under "liability 24 THE AMERICAN SPECTATOR JUNE 2005alerts" from their companies, doctors feel pressure to provide extensive prenatal screening for every disability, lest parents or even disabled children hit them with "wrongful birth" and "wrongful life" suits...
...JUNE 2005 THE AMERICAN SPECTATOR 25...
...Were he to have been conceived today,' the physician casually informed his entourage, 'he would have been aborted...
...He added that "the principal reason the Democrats defended the partial-birth abortion procedure was for pregnancies that have `gone awry,' which is not about something bad happening to the life of the mother but about their finding out the child is not in the condition that they expected, that it was somehow less than wanted and what they had hoped for...
...According to the publication Medical Mal-practice Law & Strategy, "court rulings across the country are showing that the increased use of genetic testing has substantially exposed physicians' liability for failure to counsel patients about hereditary disorders...
...Doctors and their patients use prenatal technology to screen unborn children for disabilities, then they use that information to abort a high percentage of them...
...That's the last piece of information people want out there...
...A high percentage of fetuses with cystic fibrosis are aborted, as evident in Kaiser Permanente's admission to the New York Times that 95 percent of its patients in Northern California choose abortion after they find out through prenatal screening that their fetus will have the disease...
...The right to abort a disabled child, in other words, is approaching the status of a duty to abort a disabled child...
...In an interview with TAS, Senator Rick Santorum of Pennsylvania recalled his 2003 exchange with Hillary Clinton on the Senate floor in which she endorsed eugenic abortion...
...It is less open and more subtle...
...The next stage is to actually start tinkering genetically with these embryos to create advantages such as height," says Kimbrell...
...And it leads people to abort out of confusion: `I guess I better abort, because I don't know...
...We are entering a world where we have to consider the quality of our children...
...Many countries have banned PGD...
...It's almost inevitable that there will be an increase in these cases...
...We're leaving parents with complete confusion...
...Medical researchers estimate that 80 percent or more of babies now prenatally diagnosed with Down syndrome are aborted...
...This attitude is shared by doctors who now view disabled The impulse behind prenatal screening in the 1970s was eugenic...
...Indeed, intellectual arguments in favor of eugenic abortion often generate great public outcry...
...Had the case gone to court, Khosla would have probably lost the suit...
...But the result is the same, an intolerance for those who don't fit the norm...
...Princeton professor Peter Singer drew fire for saying, "It does not seem quite wise to increase any further draining of limited resources by increasing the number of children with impairments...
...The new eugenics aimed at the disabled unborn tell the disabled who are alive, "disability is a fate worse than death," he says...
...This is a huge tangle...
...The mother felt entitled to sue Khosla because she indicated on a questionnaire that her sibling was mentally retarded and autistic, and hence Khosla should have known to per-form prenatal screening for Fragile X so that she could abort the boy...
...If you are involved in that commerce, do you really want people to go: So you aborted how many disabled children...
...They are always difficult to get...
...Try to get actual numbers on sex-selection abortions...
...But we're seeing just the tip of the iceberg...
...But American fertility clinics are offering it...
...Meanwhile, doctors are simultaIn some cases the aborted children aren't disabled at all but are mere carriers of a disease or stand a chance of getting one later in life...
...neously reporting that children born through in vitro fertilization are experiencing higher rates of birth defects than the average population, suggesting that for every problem scientists try to solve through dubious means they create multiple new ones...
...This has made it possible for doctors to abort children not only with chronic disabilities but common disabilities and minor ones...
...Rather, it is the parents with disabled children who must justify themselves to a society that tacitly asks: Why did you bring into the world a child you knew was disabled or might become disabled...
...The human genome has been completely mapped," it quotes Stephen Winnick, a lawyer who handled one of the GEORGE NEUMAYR first wrongful birth cases...
...Prenatal screening has made it possible to abort children on guesses and probabilities...
...What Hillary Clinton blurted out is spoken more JUNE 2005 THE AMERICAN SPECTATOR 23 THE NEW EUGENICS softly, though no less coldly, in the privacy of doctors' offices...
...The combination of doctors seeking to avoid lawsuits and parents seeking burden-free children means that once prenatal screening identifies a problem in a child the temptation to eugenic abortion becomes unstoppable...
...Not content to wait to see if a child is fit for life, doctors are exploring the more proactive eugenics of germline genetic engineering (which tries to create desirable traits in an embryo) and Preimplantation Genetic Diagnosis (PGD), which is used to select the most desirable embryos after extensive genetic testing has been done before they are implanted in mothers' wombs...
...This is a commercial eugenics...
...Bob Edwards, the embryologist who created the first test-tube baby through in vitro fertilization, has also drawn protests for predicting that "soon it will be a sin of parents to have a child that carries the heavy burden of genetic disease...
...After the Roe v. Wade decision, which pumped energy into the eugenics movement, doctors scrambled to advance prenatal technology in response to consumer demand, mainly from parents who didn't want the burdens of raising children with Down syndrome...
...A doctor speaking to the New York Times cited a defect for a eugenic abortion that was at once minor and speculative: a women suffering from a condition that gave her an extra finger asked doctors to abort two of her children on the grounds that they had a 50-50 chance of inheriting that condition...
...Andrew Imparato of AAPD wonders how progressives got to this point...
...It was pretty revealing...
...THE IMPULSE BEHIND PRENATAL SCREENING in the 1970s was eugenic...
...When she realized what she was advocating for, she had to put in the general niceties...
...Since the 1960s, the number of Americans with anencephaly and spina bifida has markedly declined...
...There really isn't any entity that is charged with monitoring what has been happening," says Andrew Imparato, head of the American Association of People with Disabilities (AAPD), "A lot of people prefer that that data not be collected...
...She was saying there had to be an exemption for disabled children being aborted as opposed to healthy children being aborted," he says...
...Sparking off his cousin's theory of evolution, he proposed improving the human race through eugenics, arguing that "what nature does blindly, slowly, and ruthlessly, man may do providently, quickly, and kindly...
...In 2003, Ob-Gyn Savita Khosla of Hackensack, New Jersey, agreed to pay $1.2 million to a couple and child after she failed to flag Fragile X syndrome, a form of mental retardation caused by a defective gene on the X chromosome...
...The frequent use of eugenic abortion can also be measured in dwindling populations with certain disabilities...
...Khosla settled, giving $475,000 to the parents and $750,000 to the child they wished that they had aborted...
...Whenever anybody thinks of eugenics, they think of Adolf Hitler...
...Charles Darwin's cousin, Francis Galton, coined the term eugenics in the 1880s...
...These parents get pressure from doctors who, with-out even bothering to ask, automatically provide abortion options to them once the prenatal screening has diagnosed a disability (one parent, in a 1999 study, complained of a doctor showing her a video depicting the rigors of raising an afflicted child as a way of convincing her to choose abortion), and they feel pressure from society at large which having accepted eugenic abortion looks askance at parents with disabled children...
...It sounds really bad and I don't know what the percent-ages mean.'" THE NEW EUGENICS isn't slowing down but speeding up...
...In some cases the aborted children aren't disabled at all but are mere carriers of a disease or stand a chance of getting one later in life...
...Women should not be "forced" to carry a "child with severe abnormalities," she said...
...Two-thirds of fertility clinics using PGD in the world are in the U.S., says Kimbrell...
...But to the extent that the numbers are known, they indicate that the vast majority of unborn children prenatally diagnosed as disabled are killed...
...And it predicted that doctors who don't give their patients the information with which to consider the eugenic option against disabled children will face more lawsuits as prenatal screening becomes the norm...
...They estimate that since 1989 70 percent of Down-syndrome fetuses have been aborted...
...ACH YEAR IN AMERICA fewer and fewer disabled infants are born...
...Owing to prenatal technology and eugenic abortion, some rare conditions, such as the genetic disorder Tay-Sachs, are even vanishing in America, according to doctors...
...Numerous parents are told by doctors, `We think there is some fault on the 50th chromosome of your child.' A number of polls have shown that people don't understand those odds...
...PGD is a "gateway technology" that will advance the new eugenics to the point "where children are literally selected and eventually designed according to a parent's desires and fears," he says...
...Parents who abort their disabled children won't be asked to justify their decision...
...The publication revealed that many wrongful birth cases "are settled confidentially...
...In a wrongful birth suit, parents can sue doctors for not informing them of their child's disability and seek compensation from them for all the costs, financial and otherwise, stemming from a life they would have aborted had they received that prenatal information...
...New Jersey has been notoriously welcoming to wrongful birth suits ever since the Roe v. Wade decision, after which New Jersey's Supreme Court announced that it would not "immunize from liability those in the medical field providing inadequate guidance to persons who would choose to exercise their constitutional right to abort fetuses which, if born, would suffer from genetic defects...
...But these comments, far from being unthinkable, reflect unspoken mainstream attitudes and practice...
...infants and children as puzzling accidents that some-how slipped through the system...
...This is a new eugenics, and I don't know where it is going to end...
...Without much scrutiny or debate, a eugenics designed to weed out the disabled has become commonplace...
...Try to get any numbers on reproductive issues...
...As eugenics passes through each of its stages—from sterilizing the enfeebled at the beginning of the 20th century to aborting the disabled at the end of it and the beginning of the 21st—man is indeed playing God but with-out any of his providence or care...
...Not wishing to publicize a practice most doctors prefer to keep secret, the medical community releases only sketchy information on the frequency of eugenic abortion against the disabled...
...The law and its indulgence of every conceivable form of litigation has also advanced the new eugenics against the disabled...
...Wrongful life suits are brought by children (through their parents) against doctors for all the "damages" they've suffered from being berm (Most states recognize wrongful birth suits, but for many states, California and New Jersey among the exceptions, wrongful life suits are still too ridiculous to entertain...
Vol. 38 • June 2005 • No. 5
